My son was just diagnosed with AS

[lmiranda8681]

My 3 1/2 son was just diagnosed with Asperger's, and since we've been learning more about it we realized it is what my husband has too. I always as assumed he had adhd or something(my husband), but AS seems to fit perfectly. Does anyone here have a child & spouse with AS? I also wanted to just introduce myself in here, I don't really have anyone irl that has a child on the spectrum, and it would be nice to have some mamas I could talk to that would understand.

[Treighsie]

Good luck. A friend of mine has a son with AS and she found a messageboard about it, I'll see if I can get it.

[Sanity]

My dd has AS. I am pretty sure my dh does as well.
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[zenmama]

Hugs... I did a child study on a child with Aspergers. Very intelligent child... I loved working with him. Its definately a challenge but rewarding all the same.

[4boys1girlforme]

I think DS1 has AS and I believe I do as well. I'm trying to get a formal diagnosis for DS but we have been on a waiting list for our only ped neuro for something like 8 months!:twitch:

[lmiranda8681]

I think DS1 has AS and I believe I do as well. I'm trying to get a formal diagnosis for DS but we have been on a waiting list for our only ped neuro for something like 8 months!:twitch:
yea, it's tough, we waited about that long for the evaluation through the hospital. I brought my concerns to his Dr.(2 different ped.'s actually) since he was about 12-18mo. old and was always told it was nothing to be concerned with, normal, etc. Then this last time he was like "hmm, yea, I'll set up the evaluation but he's too old now for early intervention" sooooooooooo frustrating. In the future, if I ever have any concerns with future children I'll make sure to be much more persistent and demanding. I think it's tough with your first child, because even though on one hand, I always had a feeling something was up, your with them every moment and you just see your child, it's just who he is and who he's always been and he's "normal" to me. I didn't really have anyone his age that we see regularly either to compare him to, and just thought "maybe he's just shy...he's not around kids his own age much...he'll grow out of the tantrums, etc..."

[princesshannon]

there are actually quite a few of us on this board with children/self/spouses on the austism spectrum. welcome!

[lmiranda8681]

there are actually quite a few of us on this board with children/self/spouses on the austism spectrum. welcome!
thanks:)

[cheesewhiz]

I could have written your post. DS has not been "officially" dx, but we are sure he has Asperger's, and reading about it has helped DH determine that he most likely does also, as does his dad. It is definitely genetic! So, welcome. You are not alone! :hugs:

[jennyoutwest]

I was glad to read/hear that I'm not alone. We are currently waiting for a diagnosis for autism spectrum or Asperger's or whatever is going on it seems. The tantrums. For us particularly the screaming and not responding at times etc. etc. The ped doc arranged for hearing tests next week, but I know that's not what it is. DS 2 hears what I'm saying. He's our second child, so I did have some things to compare to. It's hard when you think about how all children are different with their personalities and such, but this is beyond that for us. I hope that your son gets the help that he needs, but also the help that you as a parent need to be more there for a child with Asperger's. That's where we are right now, waiting, and wanting to know and learn about the things we could be doing in order to understand more and to help our son out more.

[Ahavati]

We think DS2 is borderline AS or autism. :( We haven't gotten him diagnosed yet as we were waiting for insurance to be worked out. It's good to see there is a lot of people here that can offer support.

And I have no clue how to start out having him tested.

[momof4]

Have your DH start by talking to his doctor, I would think.

My DS was 3 in July, and may ultimately receive a dx of AS, but they said that they usually don't give that until age 5ish, so his dx is PDD-NOS.

[leeuhhh]

hi there! my dd was diagnosed with autism (though i almost think its more like aspergers). her grandmother on her dads side has it, along with her uncle and the grandmothers brother. i also think i'm a bit "spectrumy" in some ways, but have not been formally diagnosed with anything. dd seems pretty normal to people until they get to know her a little better (or witness a tantrum, lol). it is becoming a bit more obvious now that she's getting older because the stimming looks so out of place. when she was little it was sort of funny or cute, now the hand flapping and running in circles is a bit more obvious :hapdance:. good luck to you! start doing some research and make sure you are getting the support you need. it can be tough to deal with at first but it gets easier!

[Dire Wolf]

Dr. Tony Attwood has some good books.
http://www.tonyattwood.com.au/

O.A.S.I.S. Guide
http://www.amazon.com/OASIS-Guide-Asperger-Syndrome-Inspiration/dp/0609608118

DAN!
http://www.defeatautismnow.com/

Autism Speaks
http://www.autismspeaks.org/

I have found this to be a wonderful book to help me get through to Dori:
http://www.amazon.com/Win-Whining-War-Other-Skirmishes/dp/0962203637

We have been coping with AS since 2003 and things are getting better as time goes on. Well, until recently when her father had her get 5 vaccinations at once.

The challenges will change over time and some things will get easier while others will get more challenging. Make sure you get some counseling as well for stress handling for yourself. The books will help DH as well.

Fortunately, your little one is young enough to get into an ABA program that will help and there are many great support groups out there to help you all.

Welcome to the wild and wonderful world of the "spectrum". It can be a bumpy ride, but the different perspective will broaden your life. All children are different and that goes for those with living on the spectrum. Feel free to pm me and I will see if I can dig up some more resources. :hugs:

[cheesewhiz]

Thank you for all the awesome resources, Temma!! :loveshower:

[lmiranda8681]

Have your DH start by talking to his doctor, I would think.

My DS was 3 in July, and may ultimately receive a dx of AS, but they said that they usually don't give that until age 5ish, so his dx is PDD-NOS.
The specialist that evaluated him said she could either dx him as PDD-NOS, or she could go ahead now and dx him with AS which she said she was pretty certain he has, but she did mention that it's hard to diagnose that young, and as he gets older it will become more obvious.
~~~~~~~
hi there! my dd was diagnosed with autism (though i almost think its more like aspergers). her grandmother on her dads side has it, along with her uncle and the grandmothers brother. i also think i'm a bit "spectrumy" in some ways, but have not been formally diagnosed with anything. dd seems pretty normal to people until they get to know her a little better (or witness a tantrum, lol). it is becoming a bit more obvious now that she's getting older because the stimming looks so out of place. when she was little it was sort of funny or cute, now the hand flapping and running in circles is a bit more obvious :hapdance:. good luck to you! start doing some research and make sure you are getting the support you need. it can be tough to deal with at first but it gets easier!
I know what you mean, when he was younger and did the flapping everyone would say how cute he was and how excited he gets, lol, now it's starting to look a little more awkward...

[lmiranda8681]

Thank you for all the awesome resources, Temma!! :loveshower:
yes, thank you! and thank you to everyone else to who replied, it's nice to know there are a lot of mamas here who can relate

[melirod]

I can totally relate. DD2 was dx a few yrs back. I had pretty much self-diagnosed her before we got the formal diagnosis though. Funny thing is, the more research I did on AS, I realized DH most likely has it as well. And here I thought he was just a moody butthead for no reason. :giggle:

[cheesewhiz]

I can totally relate. DD2 was dx a few yrs back. I had pretty much self-diagnosed her before we got the formal diagnosis though. Funny thing is, the more research I did on AS, I realized DH most likely has it as well. And here I thought he was just a moody butthead for no reason. :giggle:

Mine too. :toofunny:

[Shan]

yea, it's tough, we waited about that long for the evaluation through the hospital. I brought my concerns to his Dr.(2 different ped.'s actually) since he was about 12-18mo. old and was always told it was nothing to be concerned with, normal, etc. Then this last time he was like "hmm, yea, I'll set up the evaluation but he's too old now for early intervention" sooooooooooo frustrating. In the future, if I ever have any concerns with future children I'll make sure to be much more persistent and demanding. I think it's tough with your first child, because even though on one hand, I always had a feeling something was up, your with them every moment and you just see your child, it's just who he is and who he's always been and he's "normal" to me. I didn't really have anyone his age that we see regularly either to compare him to, and just thought "maybe he's just shy...he's not around kids his own age much...he'll grow out of the tantrums, etc..."

It is nice to hear this. I am/was the exact same way with Preston. I just knew something was up even though he was the 2nd child. Its nice to know that someone else knows exactly what you are feeling.

[Sara]

Have your DH start by talking to his doctor, I would think.

My DS was 3 in July, and may ultimately receive a dx of AS, but they said that they usually don't give that until age 5ish, so his dx is PDD-NOS.


That is what they did with DS. He didn't get the AS DX till he was 7ish?

[Casey]

My ODS was just dx this school year. I've been asking about him for years and everyone just brushed me off, until he started having behavior issues in school. I think my DH may also have AS. They thought he was ADHD as a child, but the more I read, the more convinced I am that it's Asperger's.

[Dire Wolf]

Thank you for all the awesome resources, Temma!! :loveshower:

You're welcome! :flirt: Glad to be of service.

The specialist that evaluated him said she could either dx him as PDD-NOS, or she could go ahead now and dx him with AS which she said she was pretty certain he has, but she did mention that it's hard to diagnose that young, and as he gets older it will become more obvious.
~~~~~~~

I know what you mean, when he was younger and did the flapping everyone would say how cute he was and how excited he gets, lol, now it's starting to look a little more awkward...

Really, in terms of services and assistance, PDD-NOS is about the same as AS. the one thing you need to be really careful of is providers/specialists/diagnosticians that recommend meds before therapies. They, generally, don't have current educations, or they have another agenda that you need to be wary. They usually do really vague dx's for the young so that they can refine it as time goes on and they learn more about the child's behavior, it makes sense in the long term, its just sort of frustrating now when you want an answer, kwim?

Yeah, it gets even more awkward as they get older. Dd1 is 12 and still occasionally hand flaps. People tend to move away and look at her strangely, which just pisses me off most of the time. Its pretty darned obvious that the child is having an issue and the rude looks only exacerbates the problem, so, quit it! :shakehead: